Well its not going to make a dent in the bad pain. Which is pants. On Sunday I had a bad day - not a really bad day, more a 7. I took several doses of 10mls of oramorph and then had a couple of fentanyl lollipops. The anti-emetics worked. The pain wasn't decreased much at all. No really bad side effects, just sleepy and stoned a bit.
Antonia (one of my oldest and bestest friends) came over with her dad and her son Morgan - so that was lovely - I don't see her as much as I would like as she lives in North Wales. She's special people to me. Anyhow I was able to cope through her visit, and showed her Doughnuts tricks and Cirrus' practical CT applications. Then I slept through most of the rest of the day.
So this shows me that on a really bad do, the fent/oramorph combo is NOT going to work. This still leaves me with the transport issue.
Otherwise things are ok. Alfie is growing apace, and is so smart. He's totally lovely. Murphy is a little more accepting of him, and Ellie really likes him now, unless he steals her bone. He is happy to share it with her, but she's not that happy with it!
Horses are fab, and I'm doing a great new cross stitch. Buying them from someone on ebay who must think I'm a total freak for buying so many!! Thank the gods that they are cheap.
Niki x
Tuesday, 14 July 2009
Saturday, 11 July 2009
Morphine....
doesn't seem to be any better than fentanyl - though I have taken a smaller dose. Just thought I'd try it and see. It is making me a bit more stoned though.
Alfie went for his first walk today - and discoved sheep poo! oh joy (for him...). He fell asleep on Ellie today which was very sweet - I did take pics, will put them up soon.
Actually, I had the last dose of morphine at 8.40 and right now at 9.15 I'm not in much pain at all - maybe it does work!
Niki xxx
Alfie went for his first walk today - and discoved sheep poo! oh joy (for him...). He fell asleep on Ellie today which was very sweet - I did take pics, will put them up soon.
Actually, I had the last dose of morphine at 8.40 and right now at 9.15 I'm not in much pain at all - maybe it does work!
Niki xxx
Friday, 10 July 2009
Got the drugs....
The GP came up trumps and RX'd me the oramorph and a shed load of anti-emetics to allow me to take the oramorph or more lollipops - without them two is my max. Some confusion as to whether the oramorph is for the big do's or if its for the worse day to day pain. I thought it was the latter and the ketamine etc was for the baddies. Still I guess I'll figure it out.
Alfie is ace! He's learning at the speed of light - he's SO clever. He's beautiful as well.
Doughnut had got "bow" down pat - he's doing it all on his own on command now. I'm so proud of him! Cirrus is as wonderful as ever, and is doing fabulously with his sweet itch - the cavelesse cream/gel is miraculous and its a darn shame that it only comes with the feed supplement, so you are let with this weeny tube! Some stupid licencing issue.
Am working hard on a cross stitch at the moment - for a friend's birthday pressie. Its challenging and fun!
Niki x
Alfie is ace! He's learning at the speed of light - he's SO clever. He's beautiful as well.
Doughnut had got "bow" down pat - he's doing it all on his own on command now. I'm so proud of him! Cirrus is as wonderful as ever, and is doing fabulously with his sweet itch - the cavelesse cream/gel is miraculous and its a darn shame that it only comes with the feed supplement, so you are let with this weeny tube! Some stupid licencing issue.
Am working hard on a cross stitch at the moment - for a friend's birthday pressie. Its challenging and fun!
Niki x
Tuesday, 7 July 2009
Response from Mr Simpson
Well I e-mailed Mr Simpson asking what to do when I have my major attacks, and he responded very quickly with the suggestion or pethedine or ketamine. Now I would just have to figure out how to get to the hospital to have those jabs!!
He also suggested oramorph for the day to day worse pain - so will see if GP will dish it up on Thurs. Its a pain having to ramp up the drugs, but the fent isn'ttouching it at the moment and I really just want to be able to sit on my horse occassionally, play with the puppy and not have to waste so much energy just sitting up.
I had a rotten day yesterday, with pain and incredible exhaustion - turned out I'd missed my tramadol SR dose at 7 am!! Not good.
Alfie the puppy is doing grand - he's learnt sit, down and leave it, and getting there with roll over. His toilet training is a bit hit and miss still - we are still having to take him out all the time - but he sits by the door if he needs to poo, so it will only be a matter of time before he does that for wees as well. He's got his second jab on Thursday, after which we can hit the road with him and get him out and about.
Horses are fine. Really really want to ride though, stamp stamp.
Niki xxx
He also suggested oramorph for the day to day worse pain - so will see if GP will dish it up on Thurs. Its a pain having to ramp up the drugs, but the fent isn'ttouching it at the moment and I really just want to be able to sit on my horse occassionally, play with the puppy and not have to waste so much energy just sitting up.
I had a rotten day yesterday, with pain and incredible exhaustion - turned out I'd missed my tramadol SR dose at 7 am!! Not good.
Alfie the puppy is doing grand - he's learnt sit, down and leave it, and getting there with roll over. His toilet training is a bit hit and miss still - we are still having to take him out all the time - but he sits by the door if he needs to poo, so it will only be a matter of time before he does that for wees as well. He's got his second jab on Thursday, after which we can hit the road with him and get him out and about.
Horses are fine. Really really want to ride though, stamp stamp.
Niki xxx
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